Jan 21
Deborah Conn

Deborah Conn

I must admit, a smile literally spread across my face as I watched six small groups of early care and education workshop participants from Santa Barbara County, California talking animatedly and quickly filling flip charts with lists of ideas. Their task was to brainstorm the benefits of inclusion for children with special needs and their families, children without special needs and their families, program staff, and the community. I was smiling because this was such a stark and wonderful contrast to the first time I’d led the same activity twenty years earlier in the same building. Even then, people could think of a few reasons why inclusion benefited children with disabilities, but it was hard for them to come up with ideas on how inclusion benefited others. And, sadly, there were a few then who actually verbalized that children with disabilities had no place in a preschool classroom with children who were typically developing.

A common theme that ran through these small groups today was “respecting and celebrating differences” – not just accepting or tolerating differences. The groups concluded, independently, that adults who grew up prior to special education legislation and the Americans with Disabilities Act were learning to value inclusion from their own preschool children. Just a few of the many other benefits noted from the various groups were: learning to work together to accomplish a goal, mastering skills by helping peers, gaining leadership skills, feeling less isolated, learning new information and skills, increasing awareness, becoming valued members of the community, being able to stay in and contribute to a community (rather than having to move elsewhere to find inclusive settings), learning adaptations that help all children, and improving honest communication.

I recently took the opportunity to talk with some Head Start teachers about how inclusion has benefited them personally. Michelle Valencia shared, “Having children with special needs in my classroom really helped my confidence and has made me a better teacher for all children.” Michelle explained that she has now taught a number of children with significant disabilities and that her successes working with them helped her become more outgoing. In fact, she has even done presentations with her program’s disabilities coordinator. I visited Michelle’s classroom recently and saw first-hand the confidence that she talked about as she worked with a very diverse and lively group of children, including a little girl with spina bifida, who was fully included in all the activities that were going on.

In another classroom I visited, Mary Flores, a center director, talked about the positive changes that she has seen in adult family members of the children without disabilities. Three preschoolers who have significant visual impairments and two children with Down syndrome are enrolled in her center. A few parents expressed concerns at the beginning of the school year about whether their own children would get enough attention and whether the curriculum would be “watered down.” Mary proudly reported that the families soon saw that curriculum is easily adapted and individualized so that all the children can participate. These same parents have told Mary that their own children have become more helpful to others in general and more empathetic since being in the program. A couple of the concerned family members are now volunteering at the center and work with all the children. In fact, one mother wants to go to school to become a special education teacher.

Although work still needs to be done to educate teachers, administrators, legislators, and the community on the benefits of inclusion, and there are surely battles that still need to be fought until all children with disabilities and their families are fully included in our schools and communities, it is heart warming to see how many people today are demonstrating that inclusion works but that everyone benefits from inclusion.

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Jan 13

Little Pinto’s Playhouse & Preschool is nestled in a residential neighborhood in California, Missouri. Downstairs in the infant-toddler room the staff is busy with the daily routine of feeding, playing and reading to the children. Eighteen-month old Cooper Hibdon soundly sleeps while a visiting nurse tends to his medical needs. Early Head Start (EHS) Partner Advocate Liaison, Kim Wells, is here as well as she visits with the staff concerning EHS performance standards.

Cooper

Cooper

Little Pinto’s, owned by Tabby Oswald, partnered with the Center six years ago as an EHS Childcare Partner. “By partnering with the Center, it has given us an opportunity to provide Cooper with the stimulation from other children that love him and high quality care. Words can not explain what this has meant to us and to Cooper,” adds Tabby.

Kim works very closely with the staff to make sure performance standards are met. Some on the standards include maintaining staff/child ratios, assuring individualization of goals for each child, ensuring the health and safety of the facility, & making sure the environment and care is developmentally appropriate, and all a part of attaining quality childcare.

According to Miss Laurie, “one of Cooper’s favorite teachers,” “Cooper doesn’t require much more care than the other children, just different care.” Cooper requires numerous medical treatments beginning at home as early as 4:00 a.m. and throughout the day until 10:00 p.m. Due to complications at birth Cooper experienced asphyxia which resulted in Cerebral Palsy and seizures disorders.

The staff has learned to give breathing treatments and how to feed Cooper through a feeding tube, all taught by his mother, Leslie. “We’ve learned a lot and it took several days of transition to understand all the treatments,” adds Laurie. Leslie is very organized and has compiled a three ring notebook of schedules when procedures and medications are due along with a list of Cooper’s doctors and a health plan to respond to any emergency.

Leslie grew up in Tipton, Missouri and had heard a little about the Center for Human Services/Children’s Therapy Center but not until she had a child with special needs did she fully understand the services and programs the Center offers. “I don’t even know how to explain Cooper’s accomplishments due to the therapies and his interactions with other children; it makes me emotional,” shares Leslie. Cooper receives occupational, physical, speech and aquatic therapy through the Center’s Systems Point of Entry Program/Missouri First Steps service coordination.

Cooper began aquatic therapy in May and once a week they drive to Sedalia to meet physical therapist (PT) Paul Chang. Paul also visits Little Pinto’s for PT on a regular basis. “I have seen the biggest improvements from aquatic therapy,” adds Leslie.

“The support the Center can offer through service coordination allows Leslie to continue to work to support her family; she knows he is getting the proper care and she doesn’t have to worry as much,” adds Kim.

Several pieces of adaptive equipment fill the corner where Cooper sleeps; most of the equipment goes home with him on Friday with help from Leslie’s sister.

“Since Cooper’s birth, it’s been an amazing journey; I never thought I could deal with all of this but we do it everyday,” adds Leslie.

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Dec 17

Tina Macaulay

Tina Macaulay

My name is Tina Macaulay.  I am currently studying Child and Youth Care at the University of Victoria.  My practicum is with Supported Child Development (SCD), a program that helps children with special needs participate in community childcare settings.  I am writing about my experience as a child with inclusion and how it led me to following my current career path.

My first recollection of participating in an inclusive setting is at the age of ten.  My mother organized for me to ‘volunteer’ at a local daycare.  This was a special negotiated after school care arrangement for me, as my three year old sister attended this centre.  I would help with snack time and play with the preschoolers for about an hour and half each day.  Shortly after I began attending this daycare a four year old child started, she was blind, and it became part of my task to help her adjust to the setting.  Initially, she was very tentative and would resist exploring the centre.  The sound of the other children and the unfamiliar setting left her frozen to the chair where she was sitting.  The details are blurry, but I recall bringing her toys to explore with her hands, as I verbally described them.  Her favourite item was a walking doll, she loved exploring the facial features, the eyes, nose, lips and the doll’s her hands.  I think because the doll was about the same size as the girl, she found it particularly interesting.  The doll soon became the motivating item to encourage her to explore the centre.  We could together walk the doll to the housekeeping corner or we could go in search of the doll in the block area.  The other children would often watch as the girl explored the new items, and soon accepted that she used her hands to understand objects and people.  They learned to pause when interacting to give the girl a moment to explore their hair, face and listen to their voice before continuing on with their play.  I found it very exciting to witness her becoming comfortable in the setting and making friends.

The process of providing child centred interventions, and patiently giving her time to explore when she felt comfortable, made for a successful learning opportunity not just for the girl but her peers as well.  And now in my career, I am doing this for other children.  In my work as an Early Childhood Educator, I have had many more opportunities to watch children with developmental disabilities participate alongside their typically developing peers.  I can attest to the value of inclusion in that it creates understanding and tolerance which facilitates development, a sense of belonging and improved social skills.  Children ideally learn to value diversity as friendships develop and they become more sensitive to others’ needs.  A social justice framework for successful inclusion insures access, participation and supports for children of all abilities in early childhood settings.  This structure is dependent on educators because their perspectives have a direct influence on whether children have equal opportunities to be involved.

Shaping individual perspectives on inclusion is relevant to my current role as practicum student with Supported Child Development program.  In my placement, I act as a consultant to childcare centres, early childhood educators and families with the objective of insuring the successful inclusion of children with designated support needs in community programs.  As a SCD consultant practicum student, with an education and experiential background in Early Childhood Education with a special needs citation, I have the opportunity to positively affect other’s perceptions in my community by providing support, training and resources.  I take this learning role very seriously and carry with me the lessons taught to me by each individual child I have had the privilege of working with.  Starting with that inspiring girl I met when I was ten.  As Martha Stewart would say, “Inclusion: It’s a good thing.”

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Nov 30

Deb VanderGaast

Deb VanderGaast

I am a registered nurse, and I operate Tipton Adaptive Daycare in our home in Tipton, Iowa. As my logo says, I provide, “Quality, professional childcare for children of all needs and abilities.” Since it is a family daycare, my daycare is completely integrated, include age integrated. This provides a unique benefit to children with developmental delays. They have the opportunity to be with children at both their physical age and their developmental age. Since everyone in the group is of different ages, sizes and developmental levels, no one stands out as being different from the group. I teach the children that everyone has special needs. Some people need a wheel chair, a blankie, glasses, a feeding tube, medicine, a pacifier, a hug, a nebulizer, hearing aids, diapers, braces, a sippy cup, a bib, a helper, a nap, or in my case, a cup of coffee. Because of this integrated environment, the kids seem to notice the differences less than they notice the similarities.

The benefit to my own children without disabilities has been remarkable. My teenagers are more sympathetic and accepting of differences in their peers. They tend to be protective of the kids that other kids tease or avoid because they don’t fit in. My two preschool-aged daughters are very accepting of children with special needs. Rather than stare at a child with a disability, they will start talking to them and invite them to play. If they have questions about a person’s disability, I encourage them to ask the person rather than talk about the person as if they weren’t there. Believe me, if someone asks about one of the kids in my care and I don’t let the child who is capable of responding answer for themselves, the kids will scold me for it.

My favorite moment was when I put a school age boy with profound physical and mental disabilities into a cube chair so he could sit on the floor with the other children during free play. I had put a small table in front of him to prevent him from falling forward. Another boy his age saw this as an opportunity for a play mate. He placed a variety of plastic animals on the table in front of the other boy, divided the animals evenly between them, and began to enact Pokie-Mon battles. The game was very fair with both boys winning about the same number of battles. The boy with cerebral palsy could not actively participate in the game, but he had such a huge smile the entire time. For a brief time he was not the boy in the wheelchair. He was just another boy involved in a game of pretend.

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SpecialQuest Birth–Five: Head Start/Hilton Foundation Training Program
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